Akhil's Mom, Manisha Lad, vulnerably shares their journey with a wealth of information & insights navigating autism

This episode is a must listen.  I get to interview Manisha Lad, Akhil's mom, who I only just recently connected with due to listening to The Telepathy Tapes and it was something that Akhil communicated in the podcast via typing that really drew me in to getting curious about modalities that helped Akhil integrate into his body causing me to take a leap and reach out to Manisha Lad for this interview.   

Manisha so vulnerably shares their journey with Akhil's diagnosis from early on to present day, and all that they learned for what worked for him both in the behavioral stand point as well as bio-medical.  It is packed with nuggets and gems of very tangible everyday advice for parenting a child on the spectrum in terms of therapy modalities to beautiful awarenesses you could apply to any of life's situations. 

I hope you all enjoy Manisha's insights as much as I did interviewing her!

She is a wealth of knowledge and you can look at her offerings in the form of coaching and helping you navigate your autism journey to working 1:1 with you/your child/teen/adult on the spectrum & she has a wonderful clinic in New Jersey.  Please see all the ways to reach out to Manisha and Akhil below:

https://heal-wellness.com

https://www.akhilautismfoundation.org

https://www.aafsensorypathway.com

https://akhillad.me/

Find your host, Jen McNerney:

https://jenmcnerney.com/
https://linktr.ee/heartrootedhealing
https://www.facebook.com/jenslpNET
https://www.instagram.com/heartrootedhealing/
https://www.tiktok.com/@heartrootedhealing

Transcript

PJ McNerney: 0:01

Warning, listen to this podcast at your own risk. Side effects may include joy, feeling, content, illumination, newfound senses of purpose and wellbeing. Courage, realizing you are not alone.

Jennifer McNerney: 0:19

Welcome to the Ripple Effect. I am your host Jen McNerney, sharing the unfolding stories that made us and healed us.

0:29

Okay, I'm so so so very excited to introduce my next guest on the Ripple Effect podcast. I have Manisha Ladd here and she, if you don't know yet, it's kind of blowing up everywhere. She is Akil's mom. And recently, if you haven't heard about the Telepathy Tapes, Akil's episode is episode two. And Really, I, we found each other just on social media and you were so gracious because I remember listening to the episode and had just gone to a primitive reflex course to get my CEUs for Asha to keep my, you know, to have my speech license up to date. And I'm like, Oh my gosh, he just described that he doesn't know where his body is in space. And then I was like, he needs primitive reflex integration. And then you might've seen something that I was sharing because I was just learning and I was downloading all the information. And then we just connected and here we are, you're on the podcast. And now I get to just hear your story about. Everything like I want to go, we only got a snippet of your story in the telepathy tapes and I like to get the deep dive as the mom and how you, you know, obviously Akhil doing super well he's and he's in college courses right now. But what let tell me from the beginning like your whole journey with. All of it. I don't even know where to start. So you go. Thank you. Thank you so much, Jen, for this opportunity. And as I say, my, my identity or my introduction always starts with I'm Akhil's mom. And Akhil is our only son and who has inspired me. And he's the motivator and inspired me to Be so passionate about autism and the unconditional love towards him the great support from my husband and without him. It's not possible. So I, we, we both got Mahesh and me, my husband, we got married in India and They came to us with a lot of aspirations and dreams and we both are booming IT, IT field in two years. We got our skills upgraded. So we were the top, we were the only couple, who were both working to the top most, company and, being pretty top most good salary in, in, in among our colleagues. Wow. And then during 2001, I decided to take a break, I said, okay, I want to enjoy all the, all the time with Akhil. And there were red flags, there were definitely red flags. As the time progressed, Akhil started responding to his name a little bit late. Akhil started walking a little bit late. And I was still concerned, but he was still responding to his name. He didn't had any gestures, no pointing or nothing till I would say till his first birthday. And after his first birthday, he stopped responding to his name, a lot of tantrums, a lot of meltdowns, and he completely regressed right in front of our eyes. Yeah, like so many of Yes. Whenever you take a case history, it's so many moms and dads have that story and it's heartbreaking, right? Right. And then finally, you know, at 18 months, he got diagnosed with autism and I had no clue what autism was. I went to the doctor and first, she just handed over me a, me a paper. She just, she just pulled a paper out and asked me a couple of questions and she said, this is autistic behavior. And I heard artistic and I said, Oh, there are artists in my house. Oh, yeah, right. Artistic, what is artistic, I don't know. So she said, No, this is autistic behavior. So and then she just gave me a paper on that brochure. There was a An old man, showing old man working in a grocery store, like sorting things and I'm like, not able to relate that what is this autistic behavior or autism connected to this old man picture and he just told me to contact your early intervention. That's it. I was not taking it that so seriously and I was unsure about it. But then, then my husband started reading a lot and,, and he would come home from office from New York and he would like. work play with him every day. So his behavior changed and he was not telling me anything because he was reading a lot on the internet and I'm telling to myself, like Why is he playing so much with him? What is it? And then as I started reading, it was all very devastating. Devastating. No hope. And then like 15, 10 days, we were like crying and like, I don't know what is this and talking to other families and whoever we spoke to. They never put us in any hope journey. Everything was very Yeah, grim, right? So we said like, okay, then, after 15 20 days, you know, we did go into the bargain, guilt, and denial. But then he said, you know, we have to accept it. You know, whatever it is. When we went to the mall, we started seeing the kids who were on the wheelchair, and they were so happy. And I told my husband, it's like, look, if they are on a wheelchair and they're so happy and now we're here. Right. I said, like, look, you know, so and then finally I started researching and I found one hopeful positive journey of sunrise program of option. So I told my husband, look, if they like Ron Kaufman story. So I said, yeah. I told my husband, if they can do it, why can't we do it? And that my India trip was planned. So I was, I thought, you know, I will go to India. Once I come back from India, we will go to, to Massachusetts. I'll go to Massachusetts. I'll get everything. I've learned all this thing and I will come and implement with Akhil. But when I went to India, they put me on ABA track. Yeah, that, that, that I'm so sorry that happened because even as an SLP, that never resonated. It felt like. It felt like dog training. It just felt so deep. I, I never, I never took to it, even though, I don't know. So yeah, I'm so sorry. So long story short, came back from India and went again, worked, you know, put everything team together, fought for his early intervention and got a good and started putting our team. And so Akhil got a solid, good, verbal behavior. Program and with a solid 30 to 40 hours of per week and, he had a good team working and it went good for one and a half year. And during that, because he was diagnosed at 18 months. So at the age of three, he started his, his school was starting at the age of three. So he had a good early intervention, and during that time his verbal imitation started coming. So he was completely, you know, his eye contact started getting better, he started doing some sign language, and he started doing some, some verbal imitation, some approximations. Yeah, those started coming. And, you know, and even his sign language, we would see that he would, he would scroll them a lot. Say that again? He would scroll the sign, like, oh, yeah, like, he will say it is either. He would try it. Either it's a cookie or it's a this or it is this so he would he would scroll all the signs Or give him a toy like we asking for car like we have a car in front of our car So speech so the therapist is expecting like a toy, but he's saying car Or there's a toy and there's a music so he's saying patty patty patty, but and but she's expecting toy Ah, so there was he so you already knew his brain processes and looks at it differently. I did not knew that. But by the way, he's scrolling. Yeah, he's scrolling that he's like a menu. Yeah, like he's like scrolling. So I said, Okay, and then he went to school. And in the venue, as soon as he started school in six months, they Brought him down. They brought him house all his skills down saying he just knows the functions of the skills, but he doesn't know them You know the lower mean the oh, okay if you give him a toothbrush He knows that you're supposed to brush with it. So he's doing all the actions and the function versus knowing the nouns, the labels. Okay. Yeah, in general, like the brought him down. Forget about nouns and everything. No, that is a long story. That is like, no, forget it. So, and Akhil had actually learned all ABCDs and everything from a toy. Was he hyperlexic? Or would you say he knew his letters early on? Because that is a, we would learn, oh, But we never, like, explored it, like, as a means to teach them. We were, oh, hyperlexic. Like, or, you know, see, I did not know all these words. Okay. Okay. You did. My SLP, like all that good time. I had not even understood what the brain is and how things and everything, because, you know, we just go with the flow that, oh, then we said, oh, the school, which is going to, it doesn't have good BCBAs or the, he's They don't have a BCBA in the class, and they class. So you were choosing schools based on the supports, right? So we pulled him out and put him into a very private, private, very high,, very reputed, private school where they say, Oh, the, we don't send kids from this town. And I said, I was not taking no as an answer. So he got into, and he opened the doors for other kids. So he started, yeah, so he started going there. But during that time, we had shifted our focus from, because he plateaued with all the therapy and school already brought him down. So we, we, we shifted our focus from behavior therapy to medical disorder. Is that so that. Was that to just get to open the doors to more treatment modalities? Was that a no, because we saw that, you know, we were seeing autism from a behavior perspective. So rather than getting to the root, the medical, the neurological into the functional medicine. And that's how we, you know, I didn't have great expectations from the school, from the ABA therapy. I had already lost. I said, okay, let's get him into a good school at least. Okay, so whatever behaviors they were taking a data, that behaviors, I would then start finding that what are the functional or what are the medical. Yes. What is the reason his nervous system is expressing this? Why is the reason he's doing this and he's looking this? Everything. So for you, the root cause, you're like, I'm not just going to look at the behavior and extinguish it. I want to know why. Because we started it because we started educating. I would go to the Dan conferences on the Google group that then we didn't have the Facebook, but we had Google groups. Yes. So yeah, you're like that. You're the pioneer mom, right? Right. You're finding all the things. So we were moms who were very. can discuss very isolated at a dan conferences we would meet together you know so we were on the top of it I would like in six to eight months we start I mean i would go to the to the doctor to the maps doctor instead of doctor telling me do this is i would go to the doctor and tell oh this is what i want you to do To do I love you. I love I would always attract the moms like you because we used to fight our pioneers and we used to fight doctors to fight with me like and he actually also complimented me telling that you had that courage to come and tell me how to treat my child. I love that Manisha, please. Thank you. I'm sure I know Akhil chose you for a very specific reason to be his mom. Yeah, I told him I told him you don't know whom you're chosen. I'm not going to take no as an answer. Fight with him and he would then I would argue with him that if If this doctor is doing, why don't you do, if this doctor is doing, why don't you, because we were educated, we were very different parents, we, and it was difficult for him that to get other parents, you know, to, to at this level, because everybody were waiting, you tell what to do. And they are all lost. So it was. So, so now with about 11 years, we come. Completely focused on his biomedical. We did the gut. We did the diet. We did all different types of diets. We did coconut kefir. Yes, you've tried it you tried everything yeah and very systematically very systematically because you guys are you and your husband been being, I mean, I'm, I'm married to a software engineer, the engineering mind, the IT, like it's like spreadsheets and, and yeah, like figuring out, right. So you guys were documenting things that were working, what works and what's not working. I still have document, I have food logs, everything. Everything they told you, we, it very, very systematically. We did it. Then we did, we also did the B12 shots. We did the detoxification, we did all types of detoxification. That time, the Dr. Buttar's protocol, the td, the MPS protocol had to come out. Oh. So we were the, that time that new study had come out. So that's how we started. So we did a nine months off. Transdermal detoxification. Okay. Then we moved to oral, we took the data on oral, we took the data on EDTA and then we took the data on IV. Okay. And then we found that which one was, so I literally have, I'm telling you when I did the oral EDTA, he was still not completely potty trained. Okay. When we started doing the transdermal, his lot of sensory needs started coming down. His eye contact got better, with B 12 shots, he, he got his pep in his life back. Oh, wow. Okay. So that's, so what works for Akhil was more of the The derma, the skin, like that started and then that plateaued during that time, he started getting PP trained, his eye contact, everything started getting better, coming back, he's recovering some of his skills, started starting getting better. So everything the behaviors were telling he can't do this, do this, do this, everything I would know that he started doing. doing it, right? So we were like, okay, hardcore, that's it. Now biomedical is this. So now we're going to go full blown into this, you know, and we had everything we need to try this, this, this, this. And then he, I remember we were doing the oral DM, DMSA. Okay. And we were going to Pittsburgh and that time he was not, he was not completely potty trained. Like he was like five, six years old, but not, but still in diapers, like five years old, still in diapers. So, I went to Pittsburgh and I gave him the oral DMSA and he was about to go do a bowel movement and I kept him on potty, on the bathroom and he did not do it. So I said, okay, next day again, we came and, he was about to do the bowel movement. So I went and put him onto the, onto the bathroom and he did the potty so I could see those differences yesterday. We gave him oral DM. So the, where's the talk? So Manisha, for people that don't, you know, I, can you explain what the oral, what is that to listeners? It's a chelating agent. It's a chelating agent. Yeah. Because see parents feel doctors. Right. Yeah. And then they put, they put the kids on the MiraLax and I mean, there's doctors. So it's an oral chelation, which is Yes, yes. See all the doctors who are DAN protocol that right, they're all al chelation. Yes. Yes. So they would tell us that we would like, people think that, oh, I'm going to do the detoxification test, the urine toxic, test and see if the toxins are coming out. So because we were educated, because we were going and before. Putting anything into Akhil's body. We were reading what it is. Yes, good for you. Just not just trusting it blindly. We never expected huge miracles. We never expected miracles. Anything we see, Akhil's eye contact is good today. That's a celebration for us. Yeah, celebrating the little things. Yes, yes. Because parents, people who are experienced parents have always told us, it's not a sprint, it's a marathon. Second, we never, look, we have accepted Akhil. When we accepted Akhil, it means we are accepted with that integrity. We don't, we don't want to fix Akhil. We just want to help Akhil. Which, is that just like innately who you and your husband are? Because not everybody Maybe that's your journey with the unconditional love. Mostly me because it's maybe it's my personality. My mom and dad have put me into those oceans and you figure it out and you learn and don't give up. So that kind of thing. Okay. So the resilience is just in you. Resilience has always been there. Yeah. And then, and then if I believe something in my mind, then, then, Then it, your thought, yeah, it creates the reality. So we started, like, we were educated, like, because we were attending the D. A. N. conference. I know. So we knew. I have to ask you, Manisha, not, not to discourage anybody, But how were you, were you privately funding all this? Because yeah, that's the part that I remember I was out in California and I had a lot of, clients are doing the chelation and going to those same conferences I would be doing in home, the SLP in home. And I would just watch this lifestyle. And I'm like, Oh my gosh, like it was overwhelming, but y'all, you as moms also were laying the framework of what it takes to be an amazing mom before I had a kid. See, I was into IT. I would have, and it was a very, very top skill, top. But insurance, Manisha, insurance didn't cover this, even if you, even if your husband is working at a top IT company, no, because it's all Western medicine. This was cutting edge, newly researching things. And we didn't have any funds from India or anything because we both came here and we were completely scratched from zero, had our own apartment. Then we got into town home and we stayed in the town home for 13 years. Okay. And it was one single person earning. We have spent, because we did not go into lavish cars or anything. You put all your money into healing. Yes. So if somebody tells me we cannot afford it, I say, you know, I understand, but we also took that. But what we did is like, we educated ourselves. I know there were lack of professionals, but then that time that the professional comes or doesn't come, Akhil did not miss his therapy. Yeah. Okay. Because we educated ourselves, you guys educated yourself and it sounds like your husband even getting the diagnosis. It sounded like he went and hit the ground running and playing with him. And yeah, wow. Yeah, we both were very, very hands on, very hands on, you know, so, so with the biomedical route. Was I have to ask because I'm trying to follow the timeline. Is Akhil in school? Is he being introduced? Is he, are you still focusing on the talking, the verbal? When did you switch from verbal to like augmentative communication or device? So when he was in the school till 11 years, you know, when the school plateaued, the school said, we don't, we, this is all we can do for him or what did they say? They stopped all his academic program. They said he. He, they, because receptively was going high, high, high, high, but expressively not. So they said, when, whatever you ask Akhil, Akhil, words were started coming. They tried PECS with him, but they did not go in full blend because PECS also requires pretty much hard work. Yeah, I had done the PECS training. So it is, it requires a lot of hard work. And one day Akhil did take all the PECS pictures and put it onto the board saying, I want to go to McDonald's and eat french fries. Oh, love it. Oh my gosh. So now in that school also, there were two things. He was in a satellite program. That team was very, very, very good. Okay. So that team was very good. So you had a multidisciplinary team. You had an OT. You had like No, no, no. It was He missed a lot of his OT. They had speech, but he missed a lot of his OT. Because they didn't, oh, they didn't understand about the proprioceptive and then she did some of the gym activities, but that's it. But Biomedically IL's haircut was not no longer issue of chelation because of biomedically. His eye contact was better because of So you heal the gut biome and the microbial imbalances. Septu started high. So now, interestingly, because the, the, as I told you, we're constantly reading, educating, reading, educating, um, the new research came about, about seizures. and speech. So we even ruled out that. So that time we knew that he had a little bit of abnormal EEG. Okay, he did. But he didn't have any seizures. He was not to the point that seizures was inhibiting him to talk. So we were all like, now what to do? We are at, we are at stuck. We are stuck. And I went to school that time and asked, told the school, ABA school, let look Abhi, I want to do RPM. And they, they, Oh, and at the time, tell me. Manisha, for people that are just like finding the telepathy tapes and this whole world is being like cracked right open, what is RPM stand for? It stands for rapid prompting method. Okay. And this, and this was considered controversial. Yeah. Yeah. It was considered controversial back then. So, so I'm telling you when Akhil was eight years old, now Akhil is 23. So even at eight years old, ABA people did not believe in this. And they still told me, told me, discouraged me and told me, no, one of the family had gone and it doesn't work. Just like I wonder why, I mean, it's just so interesting that you were just, it was poo pooed right off the bat and maybe they didn't even know about it. No, I don't know about that, but nothing was like researched. Everything was going with the books. It's not in the research. Yes, if it's not in the research. I would do a lot of things with him at home and go and tell him, tell them, this is what I'm doing. They would try it, they would get the result, but they were reluctant to implement that because they say it's not written in a book, it's coming from a mom. Uh, and you, and, but, but lo and behold, you don't take no for an answer. So, so I said now what to do, you know, we, then finally, because Akhil had two abnormal, we also did 14 rounds of IVIG and luckily it was covered by the insurance because he was sick. So we worked on his immune system. The more we worked on the immune system, his whole awareness came inside him as if he was alive. People would come to us and like, tell, Oh, what are you doing with Akhil? He looks so good. He looks from outside appearance, you know, healthier. He was so healthy. We did the hyperbaric chamber. We did the hard chamber. We did the soft chamber. We did the hard chamber twice. We did the IVIG and all these things. We were still told he doesn't know his letters. So when the school told he doesn't know his letters, numbers, colors, we give five years to that school. Five years. Five years. Yes. Wow. At the age of 10 or 11, uh, we said, you know what, I don't have any much expectations from school. Let him pull him out. Let's pull him out of the school and put into a DIR floor time school. Oh, good. You found floor time. Okay. And I say, again, I am not much of expectation, but because we don't see him from behavior perspective, there are emotions, maybe you need to connect with emotions. So we put him. Now, interestingly, he joined the school in summer, so it was a summer camp. And again, due to some personal reason, we had to go to India. Okay. But before India, he, he, September, he starts the school. And when he starts the school, he, he goes for his first typing lesson. Okay. Typing lesson. Okay. That is a supported typing. Supported typing. And it's on a device. It's not just a low tech letter board. It's a, it's a device. No, it's not even a device, it's, it's an iPad, and on the iPad, like, the facilitator has to just give a support. Just a little, just a hold. Yeah. Yeah, you know, just the pressure. Okay. Right, right. Again, I had no idea the school has this. I had no idea the school had this. Cool, okay, so it's kind of a divine little happening, you didn't even know. Yeah, and then, he goes there, and first typing lesson, and he types four lines, expressively. Okay. Whoa. Like, what do you, do you remember what he told you? He said that, he said that I like to, come in a van on a long ride to the school bus. In the, to the school. So he loved the long, long, the van. He was alone in the bus. Well, if you think about it, if he's alone in the bus, less sensory, he gets to just enjoy the scene. It was 50 minutes to go and 50 minutes to come. Okay. Right. So it's like any kid. It's like any kid. When I asked my kid, what was the best part of the day? Recess, you know, so So he, they called me next day saying, Oh, you know, we have 40 kids typing in our school and Akhil will be very benefited with this program. And this is what he typed. But I said, he doesn't know his letters, numbers, and colors. They said, no, no, no, come and check it out. What? I mean, no, I had, I still had no clue what this is. I had no clue what this is. Were you, were you disbelieving it a bit? Were you skeptical? I was not even there yet. You were, you're like, cause you didn't, you're like, they're telling me this. I said, let me just go and check it out. So I went there. You need to see it with your own eyes. Yeah. And they told me what to do. This is what it types. And I said, okay, no worries. And then we had to go to India for some personal reason. Then we came back. So September and I told him like, you know, and he started, he, he would type with me a little bit, but, but not like, Not sentences, no. November, December, when he came back, he was typing a lot in school. And they would send me, this is what he typed, this is what he typed, and he started calling my friends who were from the same school, and they say, yeah, our kids type, but there was no such of an excitement. There wasn't an excitement? No. But the school sounds excited. School was excited. They have 40 kids typing, right? Well, they, they believe, they see it. They see it in their own eyes. Then I started researching and then it was controversial. Now I said, okay, controversial means it's interesting, means, means it's going to work. You're like me. I always said, like, whatever is being like skepticism, like I need to know more about that. Yeah, because I think it will work. So now,, I and Akhil, you know, I was like that hungry, thriving mom, like every other mom, when will my child type with me? When will my child type with me? So I was in that, in that stage, right? So, Akhil and I, then we started simple, simple questions, simple, simple thing, and he was typing. And then we were talking constantly. The school not only introduces you typing, but school talked about mind and body disconnect and school talked out about reflexes. Ah, there you go. Okay, now I'm we're diving into it. And we are like, Okay, what is this reflexes? What is this reflexes? I have no clue. I had under we had done neurofeedback. So I had an idea about the brain. Yes. Somebody gave me a book of because I was all looking for answers, you know, so somebody gave me a book about about Sally Goddard book, behavior and reflexes. I have that book too. Yes. In that book, they're specifically told because now that by that time I, I had understood, oh, there's the right hemisphere, the left hemisphere, they both have to be sync. Yes. Okay. And then it is written that how the information goes from the lower part of the brain to the cortical and from so Uhhuh, I, I just knew that that's it. Right. I just knew that. Now there were no, no other professionals, you know, in New Jersey area who were about that time I didn't even touch MNRI(Masgutova Neurosensorimotor Reflex Integration) had no clue what it meant.. Right. Now comes, we were constantly talking about mind body, mind body, and I and Akhil are typing, and Akhil not typing with me, not giving me those answers, and it was just two months, you know, we were just two months, so he started hitting himself, so I started mimicking his behaviors, and I literally looked into his eyes and I told him, how can I help you, I want to help you, please, and then he just looked into my eyes, And then he typed with me and I told him, trust me, trust me. And then he typed with me saying, I cannot see my body in my mind. Wow. Wow. When he started typing with me, so much came out. Right. My God, I have so many stories. Oh my gosh, Manisha, you're going to make me cry. It's beautiful though. Like. And I am like saying, what is this? I'm like. Although six months I was completely depressed because it's like our child came into our hand and then went away. Oh, because he was in his subconscious mind. Ah, because he was in a subconscious mind and how to make him, how do you get him into his body integrated? Nobody had, we, we went all the way to Boston, Havard, Havard doctor who doesn't see the patients till you have at least one abnormal EEG. Okay. And he has a waiting list. And he does a lot of research on these individuals and he does EEG for five days. Okay. We were going to see if Akhil could participate, but why Akhil still was not talking. And interestingly, his doors opened, waiting list opened, and a couple of parents got to go and do that auditory evoked response, but we were the only one who got to meet him. And how the luck factors, I mean, we're not saying the luck factor, but the hungry, you know, if you're hungry and if you really have the integrity that I'm your intention, just drove it. Yeah. Right. And I was very excited. We went there, we did that. They put the 360 electrodes to his brain, and they did a visual evoked potential and auditory evoked potential. E, a ER. They say whatever deep EEG, something they did. And the doctor said that, look, he can take, he might be the, he might be the smartest child in the classroom. And this is 72-year-old doctor back then. Yeah. Who was only research. So he said, you can, uh, you can, he might be the smartest child in the classroom because he takes the information and decodes it and processes it at a very high level, at the cortex level. Super fast. Ah. But the returning is slow. And that was giving you the answer about, and he said it, he's, his mind is disconnected from his body. I was still not able to connect. I was still not able to. Of course. Okay. So we're still learning. And I'm like, so what is the solution? And he said, but he's a classic case of autism. He didn't have any solution for us. I was crying. I was crying in the train saying, I don't know what does, you know, what does can we, because we have done everything, you name it, and we've done everything. I know you've been, yeah. Right. I have everything in, I have presentations and I have everything. I have Akhil's videos, you know, so then finally. We started exploring, I read Dr. Svetlana's theory. What did she read? Dr. Svetlana's thesis. Oh, okay. Wow. So you got, oh, she, she is Dr. Masgutova This is doctor, this is 2011. She was in California in 2009. Wow. Okay. Not many professionals. We hardly had one or two professional in New Jersey. Wow. Okay. So then I, I, I started researching because I had knew there's something called a Svetlana Masgutova Method but nobody was able to explain me what it is. I just knew, I just knew that my child is in subconscious mind and he is, he's not conscious. Okay. And he used to talk a lot about there are many different forms of mind. And then he would talk about some of the deceased family members. So he was going on The Hill that time he was going on a hill. That sure that he was one day I went to school and I never told him I'm coming to school because they would always say, Oh, I think he knows you're in school. That's why he's acting up. Oh, right, right, right. So I went for a meeting, and not go into his room also. I was in other I was in the building somewhere on the other side and I sit in a meeting and I then I come home, and then I went to different shops and I came home. So Akhil comes and he sees like I'm in a makeup. So he types with me and saying, Oh, you went out today. You came in my school today. And you, and he says that, then after that you went here. After that, you went here, you did not get this and you, so he was all my mind already. Yeah. Completely syncing and sometimes we would read and my mind answer and his mind answer would be same. So he would tell me that, oh, uh, I know your mind answer is also same, but this is my answer. So then you, so he was already, because so many parents. Especially the telepathy tapes are they just reading my mind that, that, that he was proving to you that he could read your mind, but he also has his independent thoughts. Yes. And then, and then they would tell us, keep your mind blank because it was very hard to keep the mind. So did you have to delve into meditation and trying to like get into? No, no, that wasn't a thing. Just kind of clear your mind. Yeah. I mean, Just go with the flow, you know, just see, it is a moment, it is being in that moment and it is an experience and give him, so basically the supported typing, people brought the, thing, concept that they use your blackboard, they use your mental blackboard. So like, I was very, become a very curious researcher. Sure. And then I said, you know, um, I read Dr. Svetlana's. thesis title from subconscious mind to conscious. Oh, cool. I gotta read that. I just read the title. I did not dive into it. Okay, but you knew that was your sign that something, something's here. Yeah. And then. We dived into it, and then we religiously dived into it. Okay, again, this was all single person earning. We didn't have many professionals here. Yeah, there weren't, there weren't very many core like specialists that were doing MNRI in New Jersey. So we started hosting a lot of work because we already had a foundation back then. Good for you. Okay, like Manisha, like You're incredible. Like you're already navigating the daily challenges that you and then you have a foundation like, oh my goodness. We started the foundation in around when his biomedical journey started getting better. So we started doing the open foundation because my husband also passion is singing. So he sings Indian Indian songs and then he formed his own band and that's how he launched his band and we launched our foundation and we said you know what you can raise funds and this is how we can this is how we did you know it's really like a homegrown really like a homegrown and our focus was India because in India there are no doctors who will prescribe B12 shots So we found one doctor, we got him trained, we sponsored him to US, he came here and since then he has started many kids on the MB12 shorts and we have touched more than thousand families. You're talking about the, uh, the, the, the immune shots, the No, methyl B12 shots, Mb12, vitamin B12. Oh, B12. Okay. Yeah. The methylation because the detox pathways. Yes. Okay. So we work with the pharmacy here and that pharmacy, and this is how, you know, now like we've touched more than a thousand. And then While Akhil was typing, you know, Akhil was pouring all his thoughts, a lot of spiritual things were coming out and a lot of, you know, he would like, he would like, you know, we would take a nap sometimes, like if I would take a nap beside him or something, just laying down and watching something, he would like play in the air. As if he had an imaginary world and I would like then just squish it or I would teach him something then he'll go upstairs and after learning he will go upstairs and he will play here, there, here, there, here, there, I would run I said Akhil why are you running so he said that oh I am teaching my friends. Uh, okay. I think that time he was going on a hill, what they say. Or yeah, or just like seeing the unseen. I mean, so many, like the telepathy tapes and me having like hindsights with the kids I would work with and then I'm like, Oh, because you know, it's social skills. Like my dad had just passed in this very, this kid is like. He didn't know that. And he was like, you're, you, you miss, I saw a rainbow and a rainbow was kind of my sign that my dad was okay. Or somewhere else in a different realm or whatever. I don't know. And he's like, you miss your dad very much. And, and, and then he's like, and he, and I think he, my dad was there and he was like laughing and giggling. And then my speech therapy very like my, my programming was like, Oh, I got to teach them that that's an inappropriate response when his dad has passed. But I think he was. Yeah, so basically all the senses, you know, I, I was still not very exposed to a sensitive world, but then I dived into it, dived into it, long story short, Akhil was back then what's, what's touched here. Okay. Yes. Yeah. And then the procedure was that you touch here. Then you advance here, then you advance here. It's just a different level of prompting. And then, but with the MNRI and so much of Reflex integration work, it rapidly He didn't need the prompting. And so Then we transitioned from supported typing to rapid prompting method. Why? Because supported typing was controversial and that time the cases were out. Now they say RPM is also this. Then I, then we are at the stage that, oh, then I don't care. Right. Which so many like, look at, look at John, look at John Paul's mom is, is SLP. She's like, I don't care. I don't care. You don't care when you're a mom, we are all moms. There's a fundamental the he was understanding everything. Once we started doing the rapid prompting method, we went to the school and you know, we told that what you're teaching him is a very baby baby and it has to be age appropriate. They changed the IEP of entire school. But we had to go back to school and tell them you are working on the cortex reflexes and not on the brainstem. So we got them on board with them. And we also gave you had the science to back it right. No, actually, no. They, they sent one of the moms from the school, send one of the school therapists to MNRI course. Oh, good. Okay. Okay, great. And then once you're like Then they came to me and they say, okay, now we know. Okay, can you connect us to MNRI? I said, I was telling you. I was telling you that we already doing MNRI I know. Right. Right. I mean, that's the thing. Yeah, I'm telling you. And then they say like, Oh, Dr. Svetlana should, should know us because we, because we are also doing reflexes. Then somebody told them the reflexes, which are working on a cortex and not in the brainstem. So they connected back. Well, I will say Manisha. I, I've been to some different primitive reflex courses and, Dr. Masgutova is, it's like next level. Like, you know, you, not all reflex integration is created equally. No, no, no. Dr. Svetlana is extremely, extremely, extremely, she's a genius. Oh, like that woman. Yes. For me, the connection with her is so pure, and she's such a giver and giver. And also at that time, doc, her co-founder, Pamela Curlee pamela, and she's the only one I know. So were going into MR, we were going to every MNRI conference every six months we were in the conference. So we did. We did tons and tons and tons. So they know ba, they know me and my husband, my family, how. Very intimately. Yeah. Long story short, by the time he was 11, 12 years old, he was already expressing to me. And, you know, He, I know there was a mind, mind thing going on, but it is all because he was not, he actually said, I cannot see my body in my mind. Then he made a statement that mind is very good. mind will tell body what to do. So he had hope to, yeah, he, he said, my brain doesn't give me instructions when to start to where. Oh, interesting. Wow. He gave a lot of insights. Like we'll ask him, Akhil, what is, why do you say. A or B or C for every letter, he would, he would tell me that because my brain tells me they are same category. Then I dived into Visual Spatial Learning. I looked into Visual Spatial Learning. Visual Spatial Learning. And I said, Oh, and then with Dr. Svetlana and everything, as he started getting his body map in his mind, and his fingers and everything that started connecting. Coming online to like, yeah. He would say that I can see the body in my mind, but it's not moving. Okay, so now we can I make pictures. Ah, I make pictures, but they don't move. It was not activating the muscles or the Then he had a wax in his, he had like, he was constantly nodding, nodding, nodding, like, very involuntarily. So the school and some, in the school they typed with him and he said, we asked him, the school teacher asked him, is it tingling in the ear or what is it? What is the sensation in the ear? What is it, Akhil? What is it, Akhil? You know, we somehow, we said it might be the ear. So he said that, that the fluid in my brain is moving. Oh wow. The cerebral spinal fluid is moving. I have no idea. Fluid is moving, but fluid is moving. So, so we went to the, ENT. We pulled the wax and the nodding went away. Oh, wow. The fluid okay is wow. So he was so hyper it, it threw it, it threw, I mean, he is so sensitive. It threw off his equilibrium. Well, I have no idea. Look, I don't know. But listen, like what a gift that he was like, this all has helped us to know Akhil. So everything, like it's so much bigger than that. He's helping so many other non speakers by being able to tell what's going on in his body. But see, by that time, I know he was. you know he was reading my mind and I was looking for answers and he would type there are different forms of mind and that time I saw Dr. Diane Powell's and Dr. Deepak Chopra's interview video on YouTube and she talking about I'm seeing these kids and they are telepathic and they're really mind reading and Dr. Deepak Chopra so I contacted her, Dr. Diane Powell and said like. Like families are contacting Dr. Powell. I contacted her a couple of years back and I told I want Dr. Deepak to meet my son because we're looking for answers. Somebody give us the answers. And then she said, No, he's very busy, but, I can come and do the, do the study. I said, okay, so she came, she saw, till the time Akhil was almost independent typing. I was not touching him, but of course I had to, I still had to look, uh, at the keyboard and I, but I was, I was distanced with him. I was distanced with him. And that is all credit I give to the Reflex integration work. Okay. Yes. Now. She took the data and she went to Dr. Deepak and I, and, after two years, she told, called me saying Dr. Deepak wanted to see this in person and he's very excited. Yeah, so he chose to meet us. Which, when I was listening to the podcast, did he really leave his, was he so blown away that he left everything at your house? He also told me that he was a very, very disciplined child. A very disciplined child, like with his mental, like with his, you know, in general, very disciplined, very disciplined. Oh, I don't know what it is to see he's at a very different level. So we were very blessed. So he came. And he was blown away and I asked him to do thing. He said, I, I, I didn't expect him to do this. He was extremely happy. He was so happy, like a child. And you can see in the video that, and we, he said, okay, now after 12 cards, he said, okay, let's stop. I said, no, no, no, he can do more. He can do more. And we were just not stopping. We were just constantly doing. The study was like. Like his chief scientist who was some, I think he was in Charlotte or he was in California. So they all traveled to our house, Dr. Diane Powell, his chief scientist, Dr. Deepak Chopra, everybody traveled. Couple of five, four to five people came, the cameraman, everybody traveled to our house. Can I ask you, like when you have all these people. In the room. Does Akhil pick up on everything? Like, was he calm? Was he pretty regulated and like, fine with it all? No, no, we had to, first he asked why you all are here. Ah, yeah. Yeah, I want to know what's going on. It's a little different than our routine. So we explained him. So we explained him. There were, of course, hiccups, but not like aggression. Like, okay, like anxiety and all but right. I mean, yeah, he's like anybody else. It's like, everybody's watching you. And then he's having to prove time after time. Yeah, no, literally, there's a camera here. There's a headphone, there's a phone. There's a mic here. And there's a camera there. Everything when a camera lights everything, we had to shift everything in the house. Right, right, right. So there was also just Yeah, I saw the scientist was making the card. So Dr. Diane Powell came one day ahead because she wanted to spend time with us and with Akhil and Dr. Deepak was in the whole team was going to come the next day. So we were asked in the afternoon, I and Akhil, we were We're going somewhere in a restaurant or we were going somewhere in a shop or something and she got a call from his chief scientist that I was making, I am making this index cards and while I was making this index cards, Akhil came into my mind. Ah, wow. Okay. He was helping with the study. So what happened next? So the experiment was that his chief scientist had made cards and every card was in one envelope. Okay. And he was supposed, he's supposed to bring the envelope with him. Nobody knows what's inside. Then, Akhil is sitting at the table. I am on his right side. Dr. Deepak is behind. And they would give him one envelope to him. Dr. Deepak would have all the envelopes. He would have one envelope. Dr. Deepak will not see it. Give it to me. I will open it. I will see. I'll show Dr. Deepak. Quiet mouth. And Akhil types. Hmm. I have like chills. I mean, so I said, like, what is this phenomenon happening? Yeah. Tell me from your, your experience. And Dr. Deepak asked him that, how, how can you do that? He said, this was very easy to read mom's mind. It's very easy to read mom's mind. He's not the only now after I started my center, actually is not the only one telling me that I had one more girl in my second session, right away, first thing, open communication, it is very easy to read your mind. I had this experience while I was in India, in Akhil's school, when Akhil was typing. Does that mean that you're open? You're more open? Yeah. Yeah, you're open. So there was one boy in India, when I used to take Akhil to school, and Akhil at that time used to type a lot with me. I used to Asking so many questions, you should have like a conversations with him. Okay. So, and I have one more interesting story to tell that my niece, who was like maybe six, five, six, Yes. All right. She was almost going to a preschools preschool and she had was very attached to the soft. She was the only only daughter that time. Uh, and then the sibling came later on, but she had a soft toy, a dog, it was not fading at all. They tried everything, everything, everything. Now we knew what he was very smart and very genius mind. So we asked to Akhil. Akhil, any solution you have asked buy a dog house. Yes. And tell that the dog stays in the dog house. Oh, and it works. Next day when she was going to the daycare, Nani took the dog, put it into the dog house, put a blanket, and said, Look, the dog is sleeping. So while the dog is sleeping, you go to school. And since then, the dog completely faded. Wow. And then we asked Akhil, we asked Akhil that, What, what is it? You know, why, how did you know that? Yeah. No, no. Why? How, why is she so attached to the dog? And he said, because she doesn't have friends. Oh, so there's that emotional intelligence. Yeah. And then he typed, he typed, he wanted to, he was running all over the house. Okay. Very hyper running over the house. And he, that time he said, I wanna go and, and, find, do a research, and find a cure for diabetes and cancer. So this is a good segue, like, what do you think Akhil's life purpose is, like, what does he want to do? No, he, yeah, no, no, he asked, you know, I'll tell you, I have a lot to share, I'm telling you. He typed, I want to find, and he actually asked my brother in law, how to set up a research lab in the house. How did, how to say that again? How to set up a research lab in the house. Oh, wow. Okay. And then he said, I want to, I want to, I said, why do you want to find a cure for cancer and diabetes? I thought he might say some family members. He said no, because they both eat the cells they both eat. The cells. Oh, they both eat the cells. There are many such incidents. And if I think I listened, I think that are we not using like, like hello, we just unlocked so much. So if he was reading my mind, I wouldn't use all you wouldn't say I would eat my I wouldn't say I cannot see my body. I wouldn't say that my fingers don't move. I wouldn't Say all I would cook up. I would cook up, you know, so that's why I was very sure That I don't want to go into this mind reading right now He's using my mental space let him use it and till the time he's not He's not going into his body and he doesn't have that freedom point He will require this kind of mental support and then verbalization was coming forget about letterboard Even verbal were coming. Ah, okay. You know, that also was very thing. That's how our journey started. And then at the age of 19, he got accepted into college. So yeah, how did you, you just did normal, like applied for college, like any other normal process? So as I told you, we give five, five years to each school. The previous school also we gave five years. He wanted to go to college. They, at least I'm really thankful to them that they brought supported typing. They brought all these things. And so he's got accommodations now. Okay. No, no, they, they, they, they didn't have a college path for him. Okay, no college math. Okay. No college path but they were exposing him to this content. So, you know, by age of 19, we started doing some online schooling and from outside aggregated thing. And we just had two courses, I think pre algebra and geometry. That thing we did. We just had one transcript. At the age of 19, they say you don't require any school permission. You can just apply to college like a regular college. Oh, wow. And it was COVID. And it was COVID. I know that that's the blessing, the silver lining of COVID, holy smokes. His acupressure test was optional. Wow. So that's how our journey started. And then now, then, then afterwards, in two years, Ky came into our life because Dr. Diane Powell and Ky, somehow they connected. And then they came two years back, they came, they recorded, they saw everything. And then we were waiting for the docu series to come. The docu series. Two years. I'm so excited. I'm excited for that too. And Manisha though, thank you for sharing all this, like how, so you are helping not only your son, but you have this center in New Jersey. Can you talk to the listeners? Like, can they, how can they get involved? Can they be donating? Like, like, listen, I, with, I just, after being just cracked wide open on so many levels because I've been on a spiritual journey myself and looking at my subconscious programming and deprogramming and all this stuff. And then I, I was just getting ready to go back into early intervention and working with, um, really little kids and doing the reflex integration. I have to do root cause modalities like you, like, why is this behavior happening? Whatever. And. How can we help support Akhil other kids, like, tell us about your foundation. I would love that. Yeah. So we have been running the foundation for 16 years. We brought a lot of awareness and then we realized that just bringing awareness is not helping. I tried to connect with so many professionals and see if they can collaborate with the moment that you, you say the word nonprofit, something happens in psychologically, I think, because this has become so much of business. Yeah. Yeah. Well, right. I mean Yeah, it is. Is it a non profit or it's not a non profit? It is a non profit. But yeah, there is some weird programming that we all subscribe to around that, right? No, but in general, in general, autism is a big business. In general, autism is a big business. Oh, of course it is. Yes. I mean, you get it? Why would non profit? Like, why non profit, you know? So that's the long story short. Finally, we decided to put a center. We put a state of the art sensory gym. We hired the OTs. We got them trained in MNRI. We got one of them trained in RPM. And then for a pre vocational, we have a hydroponic unit. Oh, wow. Wonderful. Yes. We also do photo modulation with reflexes. Oh, cool. Yes, because that is another modality, which we saw that, uh, Akhil started reflexes starting in, started integrating much better with the light because with the lights does say, so, so are you doing quantum reflex integration? Okay. Because I think I just had Rebekah on my podcast and she might've met you. Yes. She said, she's like, I wish I knew. And so, yeah, because I remember I was taking a chiropractor does quantum neurology and this thing. And if you have, if you have, activation somewhere you can rehabilitate it with the light so much faster. Some of his reflexes were still not getting integrated, his moro fear, paralysis. I think with this QRI, he started getting much better. It's faster. And I was, I was, I just, it's a faster with the light in the frequency. I would, I agree too. And I do think MNRI, do you think that MNRI is going to come around with that? Because I was just at a conference with Pamela and I, and And I was like, okay, I brought my, um, I brought my red light. Is this okay? Well, you know, because in the, I think it's coming around, but, um, so what happened? Well, Pamela said and Bonnie, the other core specialists in training said, I, yeah, I've seen that is, is happening faster, but I, I still was like, I'm like you, I will, um, I will cherry pick and find what works the fastest. Yeah, yeah. So look, as a parent, we have to do what is needed. Thank you. Now, there are two things I want to, the biggest thing, message I want to give to the families and what I realized. Thank you. What, what is your, when I, when I came to my peace peace, I love that. I was struggling as if I have to do this. I have to do this. I have to find, instead of going for a movie, I would have spent time with Akhil. I shouldn't do this, you know, and sacrifice a lot of my hobbies and everything. You know, when I hit those, when I hit a point that it's not about Akhil it's about me. It always is. Right. It's always about, yes. Then why me? Why me? God answered. Why me? And then It's like, you know, how, when somebody gets diagnosed, it's like, why me? Like, why me? Yes. Why me? A meaning. Yeah. Because I and Akhil were so connected. If I'm anxious, Akhil would get anxious. I'm upset. I feel upset. Yes. School was blaming me because I am like this, so that's why Akhil is like this, you know? So when, for me to bring into myself and then the way Akhil was thinking that was matching with my guru, suddenly I started, this video started, Sadhguru's video started. Popping Sadhguru Ayesha Foundation. So suddenly those YouTube videos started coming and I said in my feed, so I said like this guy thinks just like my child. Whoa, right? So I started going for his retreats. Oh, wonderful. So you started you and I often say like, that's your spiritual journey. You had to put on your oxygen mask. Like so Manisha, what are some of your hobbies like like you like to like, I regret I could I quit classical dancing. I quit. Oh, you were a dancer. I love that. You know what, though, you can always go back to it. I just started Irish dancing at the ripe young age of 48. So I think that I decided I put the whole passion of my entrepreneur. Whatever you call it, whatever you are. Yeah, you're a go getter. Oh, yeah. So I said, you know, I just want to start, I wanted to bring my visions to reality. I said, if Akhil, when I had those visions of me and Akhil doing algebra, Akhil going to college, those visions can come true, where there's no roadmap or anything. And I think My this region should come alive and that's why I tried with the center and it's so now now i'm just going with the flow because I told once you come at peace and I stopped chasing I was tired of chasing you're chasing chasing chasing now I stopped I don't chase it I don't wait for it just to come I don't even wait I just see what is right now you gave me this opportunity game I said okay this is an opportunity maybe there's a message through this message so to to all the families and moms I want to tell and I tell faith Believe in yourself, work on yourself and don't give up. If you don't believe in yourself, if your energy is not that strong and positive, then your child will catch that. Integrity. If you're saying you believe, you have to mean it. Yeah, it's a frequency, right? It's not, you can't fake it. My breathing will change. Akhil's breathing will change. That's what I noticed, Manisha, too. Um, that's why I went to do something called neuro emotional technique, which is to kind of resolve those stored emotions. And I've understood that everybody is learning. Everybody has to be taught. Doctors have to be taught. Professionals have to be taught. Parents have to be taught. Therapists have to be taught. Everybody. They all have to not only learn the content, but now you, they have to also learn your child. So I started becoming Akhil content. I am Akhil content. Okay. And you experts are the content, content, content master. I'm Akhil's, Akhil is my content and Akhil is my, is my, I'm Akhil's content master. I'm Akhil's master. You know Akhil very well. Because you are taking this content and trying it on my child. Right. So we need to tweak things. Exactly. So that's how, that's how. So you would, you would let families know. Because it sounds like you always. were trusting yourself, not all, maybe not always, maybe not always, but I became that personality that, once you believe in yourself and you go to your and forget about when my, when my child kill express that, that to follow God, you don't have to follow a religion. You have to follow inner voice. Ah, I love that. I mean, I love the very deep thoughts, but I don't do Gaga about his thoughts because I said, these are the thoughts. And for him, it's very important to become functional, very important for him to go into his body. It's very important for him to tell his mind what to do and let his body follow. So, if he doesn't, because he tells, I don't know what to tell my mind what to do. So we started talking to his mind. After the quantum reflex integration, he stopped talking about the mind. And now he's mastering his body, I should not go into the other mind, right? He's got that. He's a savant there. Now, now he, and I, I really do believe that, yeah, he's getting these, individuals in their bodies so they can share what their gifts are with the world. Yeah. So I want to tell the families, you know, Don't wait for anybody to come and tell you that your child can do this. You tell yourself, you take that mantra. I had to work on myself. I had to go on my spiritual journey for me. I did not go to my guru to tell, take my child and fix him. No, you did it for you. Oh, it's beautiful. Okay. Now it's his life, his journey, his karma. Our karma. And we just have to do whatever. I had to go back and look into what is karma. Karma is action. Your action is belief and on your belief system. The more you change your belief system, your actions will change. Exactly. But the integrity is very important. The integration is very important. Integrity is very, very important. You have to be very itegrated with when you're in, when you are in, uh, communicating or forming relationship with individuals, you cannot present saying something. You cannot be saying something which is, which you don't mean inside. And I, I went to one of the speech therapists and she knew about Akhil a lot and she said, oh, we know Akhil, your great you are this. And she was all like. Fancy. Whatever she was saying. Whatever she was saying. It was not matching. Okay. Just type, ask her one question. If I'm so good, why am I not talking fast? She didn't know what to say. Yeah. So, also about the oral motor, when he used to, when he used to get the, those prompts. Uh huh. So, back then, in the first school, as soon as the speech therapist would come, he would start doing those prompts. Doing those prompts, I know. So, he told the speech therapist, after a couple of years, that they work only for that time. I know. So, our all go to person was Akhil. That's it. And today also our go to person is Akhil. And Akhil Akhil has many labels, autism, savant, twice exceptional, genius all that thing. I said, no, it doesn't matter. All these labels. You're like with me. I'm so sick of these labels. I said, it doesn't matter. Okay, you should know how to cook for yourself. You have to be literate. You have to take because I need to feed your mind because your mind is very intellect. You need to do, you should be doing meaningful stuff. And you should be learning all this life skills to boil egg for himself, cook for himself, make tea for himself, make your bed, do the I saw the, I saw the gardening thing you posted. The micronutrients. If I plan something for you, it will be very little because I am not in like, I am not at your level, but you, we can just put this puzzle pieces. the skills for you now where how it will unfold if I have to go on my more spiritual journey, it will happen when the time comes because I cannot leave my my guru doesn't tell me you leave your child and come to me. He'll send me back like no, if somebody is not feeling well, I don't tell you to leave them and come to me. Yeah. Yeah. And I love how Akhil said it so simply that the answers are all within us. Right? Yes. And again, it's Yes, there is a duty. As a parent, you have to do a duty. Don't, don't do the duty. Get involved. And I love that, I love that you said your husband is following his passions in the music. Yes, yes, and he also, he also has his own spiritual. The creative, yeah, we all have our journeys. He has his own spiritual. They also have a good mind to mind relationship, but they don't dive more into it. I dive. Yeah. Yeah. So that's what it is. It's been such a gift and thank you so much for, you know, I, I was a little like nervous to ask you to be on the podcast, but then I remembered like. Like, I'm like, Jen, you know, you know, these people and their journey, the, like how tough it was. I'm glad you spoke about your journey because it's not all unicorns and rainbows, right? Like you've been through it. So just seeing the telepathy tapes and wow. They're like, I didn't want people to like gloss. over your journey. Thank you for sharing. This is tangible, you know, when this is tangible, all the thing I'm not telling the hill and everything, everything. I'm not telling that's wrong. No, no, no, no, no, no. But I think you're, you're grounding, you're, you're grounding this information into an embodiment that's realistic, right? Like the struggles. And I appreciate that about you because I didn't want to gloss over that. And you, you just right away, there was just a resonance there when the MNRI, the reflexes, and I'm like, I need to like, talk to you so that you can spread the message. Yeah, my message to the family, look that you look at your IEP look at your OT evaluation, look into MNRI or any kind of reflex. There's many books out there for reflexes. And look, why if they're going to school, if it's not working, ask the question, why? Nobody is going to come and give you a pot of soup there. Now you drink the soup and your child is going to get integrated or everything. No, no, no. You have to create that soup. You have and take one day at a time, but it's a journey. You and, and yes, there are financial issues. And okay, then go take the course. Host. Take the course. Host the course. Yes, that's what you did. That's how you like, I said, then I told him that it becomes free then I know how come you got free because there was nobody else you hosted it. Yeah. No, I'm not. I'm not telling like that. I'm telling the treatment became free because I was working on my child. I was not taking him to a therapist. Ah, yes. So you almost could like your wealth of knowledge to people is like there are ways. Even without the financial means. I have website. I am my heel. heal-wellness.com. And this is all going to be in the podcast notes, everybody, but yes, akhillad.me which has all his videos from his early intervention. I have Akhil Autism Foundation a wealth of information there. We have many more podcasts. And then I also have, Our center. So I'll send you all those links and you can, and I'm going to put in the podcast notes, but thank you. Honestly, thank you for sharing you, your journey, Akhil, like we, I'm just so grateful for you. thanks. I hope, I hope this gives, some kind of foundational skills to the, because I want it to be so relatable to the family that, Oh, why I am in the same situation and I'm thinking like you, but I'm not sure if I should act like this. So if your inner voice is telling you this is what it is, go for it. That's what my mom taught me. And she didn't have any bachelor's degree. She didn't have any psychological. She was, she was a mom and unconditional love and very pure integrity. At the end of the day, when you're lost, you just, you know, you say, let me just sit down myself. Just sit down yourself and. Start writing pictures every day that my child will do this. I see my child doing this, you know, just put it out there for the, to create that reality. Yeah. Yeah. Well, and again, thank you. Like just to just to break, just you, your energy. Yeah. I can make it happen. Anybody can make it happen. And that's why I, yes. Even doctors have to do it. They have kids with autism. They have to do it. Everybody path is different. You have to find a path for your child. Every path is different. And that is so true. There's no magic one way. No. Mm mm. Take one day at one time. I couldn't do MNR and RPM together. No, we first did the ABA. That didn't work. Okay. That is done. The checklist is off. Now focused completely on biomedical. Okay. Now that, that everything that was done. Okay. Now let's focus only on reflex integration. So we worked only on reflex integration. Once he started becoming stable, then we moved into RPM. One person cannot be doing everything and there's no race. There's no reason. You don't need to catch up. You don't look. Oh, I don't look at other people's stories and say, I want my child to be on a hill. Can I want my child to be telepathic? No, look what is happening right now. You're talking about present time consciousness. And that is one thing Pamela Curlee taught me about. I was getting all worried that I didn't have all those steps for integrating a reflex. And she taught me, Jen, it's about just Touching. Yes. With love and presence. And I was in that, that sunk in. I'm like, Oh, I can do that. I'll send you Pamela Curlee's podcast for our foundation. I would love to. Yes. Cause she just, she feels like a little spirit animal to me because she's got the SLP background. Yeah. Yeah, no, she, she and Akhil and we all have very Dr. Svetlana Masgutova and Pamela Curlee and many other people, a few people and Akhil and our family are very closely connected. Very close. Well, anyways, I thank you so much for, like coming on my podcast because I'm not like. Super famous or anything or have like, I'm just like, I've had to heal my kids from Lyme disease, co infections, dyslexia, we're doing reflex integration with my daughter. So it's the moms that like stay up till four in the morning researching all the things. See back then it was Google, Google groups. They didn't have any podcasts. Okay, back then. Now it is podcast. Now it is this way. And if you could learn something, I can learn something from you. You know? That's how it is. Yeah. This is how this works. Nobody knows, you know? Nobody and, and there's not, I don't know. It just, that's why, that's why my podcast is called The Ripple Effect, because I have no idea like where the information is going, who it's planting a, it could go where, yeah, it could go, go somewhere. It'll go somewhere and somebody will have that. It's not. But that's not, that's not why I do this. I don't have, I don't do it for like the ego. I do it for helping because we all have been there and lost our way and we forgot to put our oxygen mask on as moms. Right. Yeah. So anyways, well, thank you so much.

PJ McNerney: 1:13:05

All content by Jennifer McNerney and guests are for educational and informational purposes only. Listeners acknowledge said content does not constitute medical or professional advice or services. This podcast is for private, non-commercial use Only guests on this podcast do not necessarily reflect any agency, organization, company, or potentially even themselves.